Ankylose This! Living with Ankylosing Spondylitis

Wednesday, September 15, 2004

my experience

I don't have a lot to add. It took me a long time to get a proper diagnosis. I had typical onset age/symptoms (looking in retrospect). My rheumatologist had me try various meds. After a bunch that did nothing for me (um, Naproxin? Relafen? I don't remember all the names) I finally got on Celebrex and got instant relief.

UPDATED: My new rheum tried me on Indocid and I had terrible reaction to it, it gave me blinding headaches.

It took forever to get an appointment with Arthritis Society, but once I did, they were very helpful. I went there on multiple successive visits (it's free). They gave me lots of exercises to do. I did none of them.

My main problem in general is that I do no exercises (other than walking).

In general the AS doesn't interfere much with my life, I'm sore all the time but it's not debilitating.
I have very limited mobility in my neck but this would get better if I ever did any of the aforementioned exercises.

I think the most important aspects of this thing are to get it diagnosed early (be aware of symptoms and get a qualified rheum to check it out) and then just exercise and good diet, like everything.

-- Richard

Comments on this post

  • Hi! Would like to know more about the neck exercies. Thanks in advance!
    I'm with someone whose next appointment will probably confirm (or not) AS. His immobile neck is one of the many things he's dealing with. Ran across your website googling "Rico Brogna" "Ankylosing Spondylitis". (He's a big Philly fan.)
    I'll save your blog to my favorites.

    Posted by Anonymous z (10/26/2006 10:37 PM)  

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