The Scotsman reports that the condition of snooker player and AS sufferer Chris Small has worsened drastically: he's retired and has been off medication for 18 months. A fundraising tournament on his behalf is being put together and will take place this summer.
See previous entries: AS and sports; Chris Small.
Chess player Vladimir Kramnik, 30, the current Classical Chess Champion (as in boxing from time to time, the world title is not unified at the moment) and, by rating, the sixth-best chess player in the world, had to miss a major tournament in January due to health reasons. Because you're reading about it here, you will not be surprised to know that the health reasons were ankylosing spondylitis. In an interview posted yesterday on Chessbase News, Kramnik discusses his illness (not by name, unfortunately) and recuperation (I don't think he realizes that "fully cured" will never happen), as well as a reunification match in September (against the other world champion) and a match against a computer in November.
Auto parts supplier Dana Corp has, in the course of filing for bankruptcy, has cut benefits to employees on long-term disability -- meaning they will no longer receive disability payments or health insurance. That has left Terry Stephens, a 44-year-old Dana employee who went on long-term disability last July due to his ankylosing spondylitis, in a dire situation, especially since one medication costs $1,700 a month (almost certainly an anti-TNF drug). Via Bent Not Broken.
Update 3/15: More on Terry Stephens from The Morning Sun, a Michigan daily.
The Houston Chronicle: "Patients with ankylosing spondylitis, an arthritic condition that affects the spine, may be eligible to participate in a new research study at the University of Texas Medical School at Houston."
An Australian man with ankylosing spondylitis will receive the Star of Courage for pulling a motorist from a burning vehicle (warning: pop-up) immediately after an accident. Michael Brown, who was helped by two other people, did so despite requiring crutches to walk, and suffered burns and, apparently, some spinal injury due to the rescue. What struck me, though, was the following quote from The Australian's article:
"It's an achievement, saving someone, but in my own mind it's more because my ex-wife wanted to put me in a home (due to the illness).
"For me, to do something when everyone had written me off ... it means I'm not worthless anymore," he said.
There is an article by Tammy Laber "Struck in the prime of life" in the Arthritis supplement page TAS4 in today's Globe (Friday March 3, 2006).
A good overview, then it talks about biologics.
There is one sentence at the end of this paragraph that bothers me though
Often striking men in their prime, AS takes on average five years to diagnose. During that time the disease progresses; damage to the spine may become irreversible. Yet, AS can be confirmed with a blood test.
Ankylose This! is a group blog about life with ankylosing spondylitis. Its authors post about their own experiences, medical news, and useful resources.
Disclaimer: None of us are doctors, and nothing in this blog should be construed as medical advice. We are simply patients trying to make sense of our disease.
