Those of us with ankylosing spondylitis dread getting into an accident: our spines are more fragile and less flexible, and we're at greater risk of spinal fracture or spinal cord injury. To that end, the Spondylitis Association of America has put together a training video for emergency first responders setting out the special needs of patients with ankylosing spondylitis. Press release.
Labels: emt, injury, support groups
An ankylosing spondylitis forum hosted by the Arthritis Society is taking place in Victoria, British Columbia on Thursday, October 1, between 2:00 and 4:30 p.m., at the Victoria Arthritis Centre on 2680 Richmond Road (map). Event listings here (scroll down) and here. Free to attend, but you must register in advance.
England's National Heath Service has a multi-page guide to ankylosing spondylitis; it's now permanently linked on the sidebar, under "About AS." Meanwhile, BryanUK is one of seven arthritis bloggers on the NHS website: his first posts talk about his diagnosis and pre-TNF treatment, his first week on Humira (I didn't know you had to avoid certain foods!) and family support.
Ankylose This! is a group blog about life with ankylosing spondylitis. Its authors post about their own experiences, medical news, and useful resources.
Disclaimer: None of us are doctors, and nothing in this blog should be construed as medical advice. We are simply patients trying to make sense of our disease.
