Ankylose This! Living with Ankylosing Spondylitis

Thursday, May 12, 2005

A Newby to BLOGGING but Oldie to AS

Thanks for allowing me to join you.
I'm not really sure what I'm doing but by some freak of internetry, I've landed on your blog site which is the same as mine. Only started blagging last week!!
So - you could go to my blog and read all about me and the art of waffle!!
As far as AS is concerned, I do have a further complication. I had a spinal tumour chopped out when I was 25. This has left me lame on my right side and reduced my overall spinal flexibility. The AS was discovered some years after when I had to visit a rheumatologist because I was still suffering from similar symptoms. I am now nearing 57. I have been on NSAID's and analgesia, among others, for over 30 years. During the last 4 years or so, I've started to experience gut and bowel problems and generally suffering more discomfort. Unfortunately, I had to move to a new location within the UK and still trying to find consultants to take me seriously. All that is happening is I'm being thrown from one consultant to another while they all try to work out if I've got a gut complaint, bowel cancer or the latest is Myeloma. I'm fucking sick of it. Spending all this time with the medics is doing my head in and I feel a depression coming on. Wouldn't anyone. I've already gone through hell with a failed business that's cost me £1000's and my private pension would buy me nowt through no fault of mine.
If anyone has any ideas what I should do next, please communicate. Thanks.

Comments on this post

  • What to do next? Do something that you enjoy.

    One thing I learned from all the tests and examinations I have gone through over the years is that finding out what's wrong with me is depressing as hell. Sometimes the diagnosis is such a letdown. I don't know what you have been going through, but I can say that it is important to keep positive and keep your spirits high when dealing with depressing news... I suppose that's the challenge, and it may seem a bit Polyanna-ish, but depression isn't any fun to have and limits your options. I try to avoid it as much as possible.

    Good luck!


    -=- - My web log about fighting neurological disabilities with attitude and humor

    Posted by Blogger Douglas Cootey (5/13/2005 7:06 PM)  

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