Ankylose This! Living with Ankylosing Spondylitis

Monday, February 14, 2005

AS data collection

From the comments, where you probably missed it: an anonymous commenter is collecting data on individuals with ankylosing spondylitis, on this page (which looks like it's hosted chez lui via a dynamic IP service).

As of this writing, a total of 161 people have entered their data, of which, among other things,

  • more are female (90) than male (71) -- which says something interesting about reporting, since supposedly males with AS outnumber females;
  • 72.67 per cent are HLA B27 positive;
  • two-thirds are on NSAIDs and one-third are on biologics;
  • 46.58 per cent have a family history of autoimmune disease; and
  • 44.93 per cent have had symptoms of iritis.

The average onset age is 24.21 years and the average diagnosis time is 8.1 years.

Interesting stuff.

Comments on this post

  • There is a thread about this web site on :

    * Title: AS Data Collection

    Interesting how many people with AS are left handed. Whilst the normal population has 10% of people being left handed, the above data indicates that almost 20% of people with AS are left handed.

    Similarly, about 20% of those suffering from inflammatory bowel disease are also left handed:

    Quote from :
    ""People who are left-handed are twice as likely as right-handers to suffer from bowel disease, claim scientists.

    A study of more than 20,000 people in the UK found that the risk of inflammatory bowel disease - usually Crohn's disease or ulcerative colitis - doubled in left-handed people.

    Dr Danielle Morris
    Although the prevalence of left-handedness in the general population is around one in ten, 21% of the people found to have inflammatory bowel disease were left-handed.

    The research, by a team at the Royal Free Hospital and University College Medical School in London, comes after earlier studies showed left-handers are at increased risk of other conditions such as asthma and diabetes.""

    Posted by Blogger zarkme (3/12/2005 4:30 PM)  

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